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Cancer Matters

A community that carries you 

Picture of Vijaya

Vijaya

Vijayalakshimy K Silvathorai is the Community Ambassador for NCSM and a breast cancer survivor since July 2012. Encouraged by her surgeon, she began as a navigator at the Breast Clinic in August 2013, starting with just six survivors. Over time, the program grew to include 20 navigators, expanding to support patients in lung, SOPD, O&G, and the Breast Clinic twice a week by 2018. In addition to her role as a navigator, Vijayalakshimy has delivered talks at various events, including universities and places of worship. She also founded a sewing group to create prostheses and comforters for those in need and arranged educational talks for navigators and volunteers. In recognition of her outstanding work, she was awarded the Global Hero of Hope by the American Cancer Society in 2015. She has contributed to three podcasts for NCD and was interviewed by BBC in 2019.

This is the fourth article in a series on cancer patients and case histories that I have navigated through their cancer journey. Over the years as a navigator, my understanding, acceptance, and the way I guide cancer patients has vastly changed.

Fifteen years ago, breast cancer patients saw the doctor in his room, listened, rarely questioned him, and then listened to nurses about the dates, time, and procedures to be done by the next appointment.

Fast forward to the present. Doctors in breast clinics now sit in a quiet room, and all staff know what is happening. The doctor is not interrupted and is left in peace to break the news. Doctors now normally draw, write, and explain the type of cancer the patient is facing, the chemotherapy most suitable, and the available options.

Doctors now realise the importance of spending time, slowing down, showing empathy, and providing reassurance. They clear patients’ doubts, fears, and concerns about side effects.

When nurses take over, they are sympathetic, calming, and gentle to patients and family members. Nurses and medical assistants have witnessed numerous cases and deal tactfully with patients.

Next, the cancer patient is referred to the navigators. Here, the cancer, treatments, procedures, and side effects are explained in simple terms. Navigators listen carefully to the patient’s concerns and fears and help to find solutions.

After a diagnosis, an incident, event, or change may awaken patients to the realities of their life. Patients begin to realise how acceptance, outcome, and the future depend on their own decisions.

Cancer patients know they must bear the pain, stress, and bodily changes themselves. No one can do this on their behalf.

Surprisingly, some of the strongest warriors are unmarried individuals, single parents, young parents, and senior citizens. They fight this cancer war without caregivers due to varied circumstances.

In some rare cases, cancer patients are supported by friends who rearrange life before, during, and after the cancer journey.

A community stepped in when a woman was abandoned after her biopsy. A jogger, church friends, and workplace kindness helped her complete treatment.

During a patient’s cancer journey, not everyone has a close caregiver. Some depend on their own strength, a single person, or a community.

Ask for help when you need it. Remember to explain boundaries. Be grateful to those who offered support during your journey.